Tuesday, January 20, 2009

Visit one and visit two

Okay, well, I’ve been out of commission for a few days. I’ll start with my first prolo appointment.


My first visit was on my birthday (December 18th), they didn’t want to do it then but I told them I really wanted them to start so I wouldn’t have to wait any longer. We where there quite a few hours and the doctor gave me the most comprehensive exam I’ve ever had and I’ve been to an uncountable number of doctors and specialists. He found some random stuff I didn’t even know about! It was crazy. The trigger point test surprised him the most I think. Every three
seconds he would ask “Does this hurt?” and every three seconds I would come about two feet off the ground yelling “YES!”. His wife made the joke that we just find the spots that don’t hurt and that would be faster.

After about two hours of that, they started the prolo. They put local anesthetic on the top layer of skin with small needles but those were mostly to make holes for the larger needles to go in. Those first ones were not too painful, just a pinching pain that didn’t last very long. But the prolo needles SUCK! That’s the best way I can put it. The anesthetic wasn’t enough to do anything (but it wasn’t supposed to do much that time). They did four injections on each side around my S.I. joints but each one counts as three because they insert the needled then pull it out a little ways and push it back in at a different angle three times. It is incredibly painful because they
are going through all those ligaments and touching the bone each time. They gave me things to squeeze the whole time and my hands were very sore afterwards from gripping so hard. My dad had to leave half way through the procedure, he made some sort of excuse like he had to
take a call or something but he told us later that he just couldn’t stay in there. I thought it was kind of funny. I stayed sore for about three days and then it wasn’t too bad from there. I could still feel it when I bent certain ways for a long time but it wasn’t terrible.


And now for this last time...


Well, it was supposed to be a week earlier but the doctor was sick so we rescheduled it for this past Thursday. I told them I needed the deeper anesthetic said that was fine. The doctor did a short exam and then started with the anesthetic. Honestly, that felt about the same as the prolo but I kept telling myself it was worth it because I wouldn’t feel the prolo after that. I was wrong. We waited 15 minutes for it to kick in and then they started. It felt the same as last time only somewhat worse because I was already incredibly sore from the anesthetic needles. Needless to say I was angry but I didn’t say anything. It felt MUCH worse afterwards when I was trying to get up and then when I was waiting on my mom to check out (it takes forever). My muscles in my back were so tight it really worried me, I’ve never felt anything like it before. But just like last time, even though I was really in pain, I was having to fight to keep my
eyes open. I think it’s such a draining process my body just wants to crash.

It has taken much longer to recover, and last time (after just two days) I was getting these short bursts of energy... but I mean really short, just a few seconds. I would have the sudden urge to run or jump over something in front of me which I’ve never had before. I never really did much, but the fact that I felt like it says something. But anyways, I haven’t felt that this time. I’ve been in bed all weekend and today was my first trip out. Thankfully the pain meds work if I take a whole one. Last time I only took half and it never did anything.

My next appointment is in a month. This time they will either give me way more anesthetic or none at all, I haven't made up my mind yet.

Tuesday, January 13, 2009

About me

This first post is just a brief intro.


I have numerous medical issues that started when I was 12
(arthritis, hyper-mobility syndrome, chronic pain) that can really
get to me sometimes. We were running low on treatment options because there
aren't many to begin with and I just finished my fourth round of
physical therapy... which is where most treatment plans end, seeing
as how no medicine I've tried will get rid of the pain and all the
doctors I've seen in the past five years are still completely
stumped. We are now trying Prolotherapy, and I pray it works. This
blog will be my attempt at documenting the process.

From what I understand, what I have is a collagen defect which makes
my ligaments and tendons not be a strong as they should be. I can do
some pretty weird stuff with my hands, like "bird hands" which just
means I can keep both hands flat and put my fingers back almost 90
degrees because of the tendons being so loose. It can cause pain
pretty much everywhere because of the lack of support.

Basically my core muscles are not very strong so my back tries to
compensate and that throws my hips off which then affects my knees
(same goes for shoulders, wrists, and fingers). My spine has
actually lost it's curve, I guess it happened because of
all the extra stress put on it... I'm not completely sure.

The collagen defect also affects my skin. I am extremely pale and
people usually refer to my skin as velvety soft, it all goes back to
the collagen. When I get hurt it takes forever to heal and then
(even if it's just a paper cut or something) it scars pretty bad.
There are some other weird things that come from that so you can
imagine my surprise when we started doing some research on it! I had
no idea all those things were tied together so it was somewhat of a
relief to find out.

I'll post about my first Prolo visit soon. Thursday (the 15th) is my next one.